My purpose here is to attempt to form a self-help support
group, and a resource guide, to other families afflicted
with SCID. There are not many such families out there,
and the understanding that others have gone through what
you are going through, can be not only a comfort, but
a saving grace. Some who find this page may feel that
they have moved beyond the need for this type of help;
however, I implore those persons to reach out and help
others who are just beginning to learn what it is to cope
with this illness. This page can only grow with
the input of those who have an interest in this subject.
I welcome comments or questions from doctors and researchers
in the immunologic field, as well as the family members
of persons afflicted with SCID. I would like to share
information and resources among those interested.
The majority of information which this page presents
is in the form of links to information outside of this
website. The purpose of this is to share
the resources which I and others have found. This
website is, therefore, an important starting point when
looking for online information concerning SCID.
Please let me know of any relevant links which you do
not find included here.
Most of my personal experience has been through the Pediatric
Allergy and Immunology Department at Duke University Medical
Center in North Carolina. I feel that this website
is a good place to exhibit the names and addresses of
such doctors and facilities, so that others may benefit
from the efforts taken by these physicians. If you would
like for me to include your doctors' names and addresses
here, please ask their permission and then e-mail me the
names, addresses, phone numbers, e-mail addresses, and
URL's, if applicable, for your doctor or other medical
support personnel.
You can send e-mail to me here: scidemail @ scid.net
All names of physicians and other medical
support personnel have been supplied by various individuals.
This list in no way endorses or guarantees the performance
of these people, organizations, or groups. It is merely
a list of providers who have been helpful to other patients.
Please inform me of any links which no longer work.
